Sandwiched Support

Category: Uncategorized

  • April 31, 2025

    What Next?

    My husband and children and I are away on a short trip and I am on a balcony with a moderately distant, but beautiful view of the bay. Below and to my left there’s also a back alley loading dock area full of trash cans, pallets, and plastic crates belonging to an upscale restaurant in the area where the employees sit on the dirty concrete stairs smoking one by one and staring off into the distance. This little condo is full of hopes, dreams, and little efforts to fix it up, but it and its complex remains dated and there’s plenty of evidence that it is not yet fully renovated. The price was right after our primary budget went to the trip out west.

    I am allowing myself to just write once here per weekend. I haven’t written a Sunday morning post yet, but I figure anytime between Friday evening and before my weekday posts start again on Monday works.

    I am struggling to accept all that might be coming next. Mom did in fact pass gas post surgery but did not meet goals from there. Her recovery was on track on Thursday with the aforementioned goal met and my family took the opportunity to seek the beach as an end of summer treat before sports are in full swing and while Mom was in seemingly great hands.

    Somehow our setbacks with her medical status have often reared their ugly heads during holidays of all kinds. No sooner were we celebrating a shift in cautious optimism to a stronger hope that the surgery at the big hospital with the competent teaching surgeon fixed the problem, then Mom was starting to say she had pain again, though it felt somewhat different than before.

    I spoke to the caseworker twice by phone about the plan to send Mom to an Acute rehab facility associated with the big hospital just down the road. The big hospital system was able to transport directly which was extremely helpful because Dad was visiting his brother who is in a long-term care facility out of town and my aunt (Mom’s only sibling) was dog sitting and on call to go pick up Mom and drive her wherever if she became ready for discharge, if the hospital system would not transport her, and if transport had to happen before Dad was available again late Friday.

    Mom called Friday afternoon while I was on the beach saying that she was starting to have abdominal pain again and we were talking about whether they should have encouraged her to eat quite this quickly post surgery and post passing gas given her history of various issues (post initial emergent surgery in October 2024 at the small hospital). From Monday evening’s surgery things were going ok, though gradual, and she was having expected post-surgery pain. However, then they introduced soft foods without even being on just liquids post gas-pass for 24 hours. Mom and I and others questioned this and I still wonder why we cannot take baby steps with a medically complex situation like Mom’s. Passing gas Thursday morning, maybe we wait until at least Friday morning to move beyond liquids. Doesn’t seem unreasonable to me. But I suppose “protocol” whatever that means, encourages the food ASAP model. Or very likely it’s a managed care issue. Or even more likely a combination of issues.

    I am sitting here dumbfounded that we are back here again. The caseworker got Mom into an Acute rehab where there are thankfully medical doctors because Mom wanted to come home if she was not going to go there because she did not want to be back in a Skilled Nursing Facility for rehab for a number of reasons.

    Fast forward to yesterday I am very very grateful that they transported her to their acute rehab facility and that their docs, I believe, monitored her as her pain started right before she was taken to the rehab on Friday evening and worsened while she was there all of Friday night and into Saturday. And by last evening they transported her back directly to the ED of the big hospital where she had surgery Monday because nothing helped the pain or constipation situation and she was vomiting repeatedly at that point. And last evening over a puzzle with my 9 year old I got the news that Mom was back in the ED with level 10 pain, nausea and vomiting, and that she had been given all kinds of things at the rehab to help her pass her first bowel movement post surgery and all she got out was one very small hard part of a stool and nothing else and the pain and of course quite a bit of anxiety at this point once again continued.

    I spoke with her on the phone a number of times last night and to the ED doc examining her by speaker phone on Mom’s cell phone. All I got is that they will do a CT with contrast. This is what I know to be a standard first step based on experience with Mom, but she had to drink the contrast while nauseous. Thank goodness for Zofran but that didn’t even completely do the trick. I fell asleep last night knowing she drank the contrast and that CT was to be around 11:30 PM.

    I woke up at 5:45 AM needing to use the restroom and did so while reading Mom’s texts from 4:30 AM. She shared that she has another small bowel blockage (we were so sure and the latest surgeon seemed so sure that the problem area was resected on Monday but now that we’ve introduced some food back in we have the same or similar blockage problem again). She shared that she had a size 16 tube placed in her nose to avoid pneumonia and she said they told her it was needed to get all of the contents all of her stomach which is SO disheartening because she is texting me how uncomfortable it is and we have spent a lot of time during ED visits at the small hospital advocating for a child-size tube for Mom because her nose is small inside and she is a “hard stick” both when it comes to NG tubes and finding a suitable vein for an IV as well.

    Waiting for the shift change to fully occur on this holiday weekend before I reach out for an update. Mom is not answering texts right now and I hope she is sleeping.

  • April 28, 2025

    Glad You’re With Her

    She meant so very well. She has always been warm as can be to my family and I and she is a compassionate, caring, mom and retired nurse. But today, after I sent a text update on my mom that included a family member on my dad’s side, she concluded a text of encouraging responses with “glad you can be with her.”

    I hearted the whole text because I appreciate her love and encouragement, but here’s the thing, I’m not with Mom. And this brought up a little guilt I had to briefly work through today because, as planned ahead of time, my husband and I are away on a long weekend trip. We got the trip insurance in case something did not go smoothly with the surgery or the weather or a number of other factors. But we made arrangements for another family member to visit Mom today and to take care for our dog while Dad is also out of town for one night. And we hit the road knowing Mom is recovering and well cared for.

    I was there for 9 plus hours the day of the surgery and the big hospital is almost an hour away. And I am not writing this because I think my family member would judge if she knew I wasn’t with Mom today, but instead because of the feelings it brought up in me. I have spent an unbelievable number of hours at appointments and in the ED and visiting at the hospital and with in-home care team members and ordering and picking up supplies and helping to provide care.

    If you are an advocate or a caregiver, take note. Sometimes when our loved one is stable, recovering, and under the care of others (with or without loved ones visiting) it is helpful for us to focus on our kids and ourselves and to seize the opportunity to be away from where ongoing support may be needed in the future.

  • April 28, 2025

    Glad You’re With Her

    She meant so very well. She has always been warm as can be to my family and I and she is a compassionate, caring, mom and retired nurse. But today, after I sent a text update on my mom that included a family member on my dad’s side, she concluded a text of encouraging responses with “glad you can be with her.”

    I hearted the whole text because I appreciate her love and encouragement, but here’s the thing, I’m not with Mom. And this brought up a little guilt I had to briefly work through today because, as planned ahead of time, my husband and I are away on a long weekend trip. We got the trip insurance in case something did not go smoothly with the surgery or the weather or a number of other factors. But we made arrangements for another family member to visit Mom today and to take care for our dog while Dad is also out of town for one night. And we hit the road knowing Mom is recovering and well cared for.

    I was there for 9 plus hours the day of the surgery and the big hospital is almost an hour away. And I am not writing this because I think my family member would judge if she knew I wasn’t with Mom today, but instead because of the feelings it brought up in me. I have spent an unbelievable number of hours at appointments and in the ED and visiting at the hospital and with in-home care team members and ordering and picking up supplies and helping to provide care.

    If you are an advocate or a caregiver, take note. Sometimes when our loved one is stable, recovering, and under the care of others (with or without loved ones visiting) it is helpful for us to focus on our kids and ourselves and to seize the opportunity to be away from where ongoing support may be needed in the future.

  • August 27, 2025

    The Thing About Gas After Surgery

    After certain surgeries you have to pass gas (among other goals) before you can move onto the next goal and ultimately before you’re considered far enough along in your recovery to go home.

    After all 4 c-sections this was part of my recovery process, celebrating my first post-surgery fart because it meant that things were working again post surgery. I (and I imagine most others) spent most of my life trying to avoid passing gas or at least trying to avoid doing so around others and then discovered a place in the hospital where passing gas is revered and a time in my life when I was hoping to have some to pass. Who would have thought?

    It’s Mom’s turn to have that goal on her list and we are all on the edge of our seats for a couple of days now (which apparently is normal) for this to happen because it’s nothing by mouth including water until then in the case of her surgery. A humbling time where we are realizing how we can truly be grateful for certain things we always imagined we’d be wishing away.

  • August 26, 2025

    Greet the Loved Ones

    I’m sure there are plenty of thoughts from the point of view of the medical professionals on this and most certainly I do realize that they are at work when this is all happening and have plenty to think about regarding the patient.

    However, following my family member’s surgery, I want to feel welcome for a brief visit in her hospital room. Mom’s most recent surgeon (phenomenal in so many ways: Knowledge, Skills, Ability to Communicate, and Bedside Manner toward both the patient and the family members) spoke to me around 6 PM last evening. After 7 PM I asked for her room number because I live just under an hour away from the big hospital and I was ready to go home after seeing her. I approached the front desk staff member in the surgical waiting room and she looked up the room number for me and called the unit ahead. They shared that it’s a shift change and encouraged me not to come until 7:30 PM which I did and I was still alone in a dark hospital room when I arrived because Mom wasn’t there yet.

    Two nurses in the hallway were busy and ifnired me until I approached them. There was no or ask the desk and I asked if I could go to Mon’s room and the one nurse kindly and easily waved me on.

    But when my mom arrived in her room, the gentleman transporting her by pushing her gurney did not make eye contact with me or speak to me. Worse yet the bedside nurse came in and began acting like I was not even there. The transfer to her hospital bed went smoothly but neither would look at me until I thanked them several times over and then politely explained that I would not be staying long. I also, in an easy-going way apologized when I got in her way and showed her the four items I was leaving behind for Mom. She was pleasant enough and answered me.

    But I wanted to be greeted. I wanted the staff to introduce themselves to me and to make me feel welcome. It wasn’t the ED at 4 AM or something like that, it was the start of a shift, and even if it was it would go a long way to greet and welcome the loved ones of people who had surgery.

  • August 25, 2025

    Lonely Waiting

    Mom’s surgery is today. It’s going on now. It’s been a long day as her arrival to the big hospital was scheduled for 11:15 AM and she was prepped and ready before 1:00 PM but another procedure with another surgeon ran overtime in the OR she was to be going into. She just went into the OR just before 3:15 PM. Her surgeon and anesthesiologist seem very competent and we are hopeful! But the procedure is extensive and risky and I have been texting, calling, and posting on social media because I am on my own here, waiting, and technology allows me to receive support from friends and family from a distance

    I am to receive updates approximately every 2 hours. The surgeon shared that he scheduled her this way as he is already here all night so there is no rush and the procedure could take 1 hour or 6 hours. We knew it was going to be complicated going into it.

    They called the surgical waiting room about an hour and a half into her entering the operating room so that the staff member at the desk could let me know that they had just then started surgery now, but that it took anesthesia a while to place her lines (IV and some other things they discussed with us ahead of time) so it will likely be quite a while yet.

    I have so much support from a distance yet I am sitting here alone just like I did right after COVID in the county where I grew up while my Dad had a quadruple bypass surgery. He is doing very well physically now about (I think) 5 years later or so. I’m an only child and most of my close friends have as many or more kids than I do and they have been working all day or caring for kids all day or both. They are running kids to activities because it’s a Monday night at the start is the school year and making dinner and some will soon start the bedtime routine for their young ones. Would be tough to ask one of them to accompany me even though I know they wish they could be here.

    We have been marathoning hosting celebrations for three of our kids’ summer birthdays and hosted a celebration for a faith-based milestone for our youngest just yesterday. We have very little margin in which to plan and we didn’t know how the day would go so we agreed that Dad would get the kids off the bus like he always does and save his energy for visiting Mom tomorrow and Wednesday while I am working. And my husband worked all day and is running the kids to activities so that didn’t plan for him to be here, but now I wish he was.

    Great news in the middle of writing this (an hour ago) Mom’s surgeon walked into the waiting room much sooner than I expected and shared how the procedure went better than expected and that many things we were concerned might happen did not occur and all of this is amazing news!! It took them longer to get the lines in her this time (a number of factors are making her a tough stick at the moment) than the surgery took.

    And my cousin who works here came and gave me a hug a half hour ago as she headed in for her night shift. So I have much to be thankful for as I wrap up this post!

    I will say though that the waiting was lonely and difficult and I will be asking and trying to arrange someone to wait with me whenever there is a next time. Once Mom is cleared by this surgeon she will pursue knee replacement surgery next. Hopefully that will not be as nerve wracking.

  • August 22, 2025

    Fun Fact about Founder and Family

    My aunt, Mom’s only sibling, started a fun tradition with my two older cousins of a first day of school treasure hunt where they followed clues around the house or yard after school on the first day to end up finding a prize or gift. When I headed to kindergarten and beyond, Mom set up those treasure hunts for me at the end of every first day of school with poetic clues.

    I carry the tradition on with my kids and though I am running behind this year with a lot going on, I’ve written the clues and we plan to do the hunts over the weekend. It’s something the kids love to do and I hope they will share it with their children one day.

  • August 21, 2025

    Caregiver Syndrome

    Saw a very brief video online today where Mel Robbins is describing Caregiver Burnout and shares that she does not want to see her followers make themselves wrong over it, encouraging them not to blame themselves.

    This is exactly what I needed to hear tonight as I am sitting in my car waiting for my son at baseball practice and it’s running a half hour late and then I am off to pick up my oldest from work. I am proud of them and want them to have all they have both in terms of experiences/opportunities AND belongings, but there are 4 of them and they Just went back to school today and I spent ALL day working or organizing my moms entire closet and drawers with her and I just about Always feel spent.

    If you’re thinking that maybe cleaning out and organizing my mom’s entire wardrobe wasn’t the greatest choice for my first day without the kids and that I could have chosen not to do that so that I could rest between online clients or so I could have gotten some other things accomplished for me, technically you’re right, it was a choice.

    But it’s complicated, Mom has surgery on Monday and she has lost so much weight since October and all she has gone through and with the recent months of a liquid diet. So when I went to help her pack her bag for post-surgery PT/OT rehab she said she needed to go through her clothes to purge what is way too big now and to figure out which size of all of the clothing she has saved over the years fits her. I can’t say it was a bad time entirely. She and I had a nice time togethers but it’s a lot of work hauling everything around and sorting it all and putting it all back and hopping on calls and then returning.

    In this sandwiched season I have done some direct care, but I am not even someone who does that daily. I truly feel for those who do that work around the clock. I cannot wrap my head around what it must be like to do that work. I am struggling with never having more than an hour or two to myself in a week’s time during the summer and to get those two hours I am either losing sleep or just ignoring some things that quite urgently do need to be done but are not emergent.

    Now that the school year has started and my children have a structured place to go I will be able to set aside one day a week to have a little self-care. Tomorrow I will have the opportunity to go for coffee with one or two wonderful friends who get me at a great place and I have appreciated with both my “hairapist” and my therapist and both are greatly needed. But I won’t be able to do all of that every week. There will be errands and appointments for my parents and children and many many things to prep from meals to fun things like costumes for trick or treat (that will still stress me out because my attention will be divided due to 50 other things I don’t prefer to have on my plate).

    Maybe I will miss this, but honestly I highly doubt I will miss all of it. And at the very same time it is Also True that I love each one in my household so very much.

  • August 20, 2025

    No Calm Before the Storm

    Mom’s surgery is Monday and my kids go back to school tomorrow (one went back today for a half day intro to the high school- went well) and I am doing my best to celebrate 3 of my kids’ summer birthdays with all I’ve got and it’s not always landing the way I hoped as I am out of energy from doing all the sandwiched primary caregiver and advocate does while also working part-time and being the full-time summer camp counselor, tour guide, cruise director (if the cruise is my SUV or the minivan we rode in on our trip), mediator, wrangler, and personal chef of those I love the most and am also most frustrated with these days.

    Burnout is an understatement, but there are the most fulfilling glimpses of what I hear that I will one day miss the most. When my efforts land well and a plan comes together and, dare I say, when someone appreciates it, the heavens open and I find it all worthwhile.

    But there are many hours and even days when this is not even close to being the case and it’s challenging to say the least. Today was a day of higher than possible expectations on my part. What I imagined accomplishing was absolutely unrealistic and I ended up in tears apologizing to my kids that on their last day of summer I could not make all that we talked about happen.

    The lemonade was that we all agreed to keep enjoying in the days to come, but that turned sour again when I found yet another trip to two stores to go find school supplies that I forgot to grab totally overwhelming after my son’s soccer practice and a day full of not getting to what I wanted to get to. I cried it out repeatedly today and ended up in several rants, most of which I’m not proud of, but at the same time it is also true that I want to genuinely express that motherhood, with or without the sandwiched situation,

    Tomorrow the wheels on the bus will go round and round and I will have about 8 hours (with Dad helping with the buses) to get a whole lot done for work, to write clues for first day treasure hunts, and to prepare for two small family gatherings I’m fitting in before Monday’s surgery for Mom.

    There will be no calm before the storm of advocating for Mom medically returns.

  • August 19, 2025

    Laundry Rules

    I make them give me 24 hours notice if there’s a certain shirt or other clothing item they need or want my a certain day. I have been screamed at by all 4 of my children because they didn’t have a clothing item they wanted when they wanted it and I keep telling them, especially the teenagers, that they need to give me plenty of notice or they won’t have it on time. I am a very busy sandwiched working mom, wife, and daughter of aging parents and there is no laundry fairy.

    Before you remind me of the value of training my children, the 15 year old has now been doing his own wash for over a year. We start laundry independence at 14 and putting away folded wash at age 6. But they are still working on thinking and planning ahead and it’s definitely a one step forward, two steps back process.

    I am too busy living, working, and adventuring with my kids and our family and friends to just be home keeping up with the laundry. I get just enough done in time and my husband wishes I would adopt a minimalist lifestyle where I have just a week’s worth of clothing for everyone and just wash it once a week, rinse, and repeat.

    I like variety and bargain shopping way too much and am much more of a maximalist. And I cannot imagine not picking up extras at thrift stores so we have plenty even though a bunch is piled up waiting for its turn for a wash, dry, fluff, fold and brief visit to the drawer or closet.

    Tomorrow my 13 year old wants a specific shirt and I caved and put it in the washer and then the dryer so he can grab it out of there in the morning, but there wasn’t any notice that he didn’t have a plan. It’s one load after another around here and that can be quite draining for the default sandwiched primary caregiver of the home and the things that no one else feels like helping with.