Sandwiched Support

Tag: health

  • April 28, 2025

    Glad You’re With Her

    She meant so very well. She has always been warm as can be to my family and I and she is a compassionate, caring, mom and retired nurse. But today, after I sent a text update on my mom that included a family member on my dad’s side, she concluded a text of encouraging responses with “glad you can be with her.”

    I hearted the whole text because I appreciate her love and encouragement, but here’s the thing, I’m not with Mom. And this brought up a little guilt I had to briefly work through today because, as planned ahead of time, my husband and I are away on a long weekend trip. We got the trip insurance in case something did not go smoothly with the surgery or the weather or a number of other factors. But we made arrangements for another family member to visit Mom today and to take care for our dog while Dad is also out of town for one night. And we hit the road knowing Mom is recovering and well cared for.

    I was there for 9 plus hours the day of the surgery and the big hospital is almost an hour away. And I am not writing this because I think my family member would judge if she knew I wasn’t with Mom today, but instead because of the feelings it brought up in me. I have spent an unbelievable number of hours at appointments and in the ED and visiting at the hospital and with in-home care team members and ordering and picking up supplies and helping to provide care.

    If you are an advocate or a caregiver, take note. Sometimes when our loved one is stable, recovering, and under the care of others (with or without loved ones visiting) it is helpful for us to focus on our kids and ourselves and to seize the opportunity to be away from where ongoing support may be needed in the future.

  • April 28, 2025

    Glad You’re With Her

    She meant so very well. She has always been warm as can be to my family and I and she is a compassionate, caring, mom and retired nurse. But today, after I sent a text update on my mom that included a family member on my dad’s side, she concluded a text of encouraging responses with “glad you can be with her.”

    I hearted the whole text because I appreciate her love and encouragement, but here’s the thing, I’m not with Mom. And this brought up a little guilt I had to briefly work through today because, as planned ahead of time, my husband and I are away on a long weekend trip. We got the trip insurance in case something did not go smoothly with the surgery or the weather or a number of other factors. But we made arrangements for another family member to visit Mom today and to take care for our dog while Dad is also out of town for one night. And we hit the road knowing Mom is recovering and well cared for.

    I was there for 9 plus hours the day of the surgery and the big hospital is almost an hour away. And I am not writing this because I think my family member would judge if she knew I wasn’t with Mom today, but instead because of the feelings it brought up in me. I have spent an unbelievable number of hours at appointments and in the ED and visiting at the hospital and with in-home care team members and ordering and picking up supplies and helping to provide care.

    If you are an advocate or a caregiver, take note. Sometimes when our loved one is stable, recovering, and under the care of others (with or without loved ones visiting) it is helpful for us to focus on our kids and ourselves and to seize the opportunity to be away from where ongoing support may be needed in the future.

  • August 27, 2025

    The Thing About Gas After Surgery

    After certain surgeries you have to pass gas (among other goals) before you can move onto the next goal and ultimately before you’re considered far enough along in your recovery to go home.

    After all 4 c-sections this was part of my recovery process, celebrating my first post-surgery fart because it meant that things were working again post surgery. I (and I imagine most others) spent most of my life trying to avoid passing gas or at least trying to avoid doing so around others and then discovered a place in the hospital where passing gas is revered and a time in my life when I was hoping to have some to pass. Who would have thought?

    It’s Mom’s turn to have that goal on her list and we are all on the edge of our seats for a couple of days now (which apparently is normal) for this to happen because it’s nothing by mouth including water until then in the case of her surgery. A humbling time where we are realizing how we can truly be grateful for certain things we always imagined we’d be wishing away.

  • August 26, 2025

    Greet the Loved Ones

    I’m sure there are plenty of thoughts from the point of view of the medical professionals on this and most certainly I do realize that they are at work when this is all happening and have plenty to think about regarding the patient.

    However, following my family member’s surgery, I want to feel welcome for a brief visit in her hospital room. Mom’s most recent surgeon (phenomenal in so many ways: Knowledge, Skills, Ability to Communicate, and Bedside Manner toward both the patient and the family members) spoke to me around 6 PM last evening. After 7 PM I asked for her room number because I live just under an hour away from the big hospital and I was ready to go home after seeing her. I approached the front desk staff member in the surgical waiting room and she looked up the room number for me and called the unit ahead. They shared that it’s a shift change and encouraged me not to come until 7:30 PM which I did and I was still alone in a dark hospital room when I arrived because Mom wasn’t there yet.

    Two nurses in the hallway were busy and ifnired me until I approached them. There was no or ask the desk and I asked if I could go to Mon’s room and the one nurse kindly and easily waved me on.

    But when my mom arrived in her room, the gentleman transporting her by pushing her gurney did not make eye contact with me or speak to me. Worse yet the bedside nurse came in and began acting like I was not even there. The transfer to her hospital bed went smoothly but neither would look at me until I thanked them several times over and then politely explained that I would not be staying long. I also, in an easy-going way apologized when I got in her way and showed her the four items I was leaving behind for Mom. She was pleasant enough and answered me.

    But I wanted to be greeted. I wanted the staff to introduce themselves to me and to make me feel welcome. It wasn’t the ED at 4 AM or something like that, it was the start of a shift, and even if it was it would go a long way to greet and welcome the loved ones of people who had surgery.

  • August 25, 2025

    Lonely Waiting

    Mom’s surgery is today. It’s going on now. It’s been a long day as her arrival to the big hospital was scheduled for 11:15 AM and she was prepped and ready before 1:00 PM but another procedure with another surgeon ran overtime in the OR she was to be going into. She just went into the OR just before 3:15 PM. Her surgeon and anesthesiologist seem very competent and we are hopeful! But the procedure is extensive and risky and I have been texting, calling, and posting on social media because I am on my own here, waiting, and technology allows me to receive support from friends and family from a distance

    I am to receive updates approximately every 2 hours. The surgeon shared that he scheduled her this way as he is already here all night so there is no rush and the procedure could take 1 hour or 6 hours. We knew it was going to be complicated going into it.

    They called the surgical waiting room about an hour and a half into her entering the operating room so that the staff member at the desk could let me know that they had just then started surgery now, but that it took anesthesia a while to place her lines (IV and some other things they discussed with us ahead of time) so it will likely be quite a while yet.

    I have so much support from a distance yet I am sitting here alone just like I did right after COVID in the county where I grew up while my Dad had a quadruple bypass surgery. He is doing very well physically now about (I think) 5 years later or so. I’m an only child and most of my close friends have as many or more kids than I do and they have been working all day or caring for kids all day or both. They are running kids to activities because it’s a Monday night at the start is the school year and making dinner and some will soon start the bedtime routine for their young ones. Would be tough to ask one of them to accompany me even though I know they wish they could be here.

    We have been marathoning hosting celebrations for three of our kids’ summer birthdays and hosted a celebration for a faith-based milestone for our youngest just yesterday. We have very little margin in which to plan and we didn’t know how the day would go so we agreed that Dad would get the kids off the bus like he always does and save his energy for visiting Mom tomorrow and Wednesday while I am working. And my husband worked all day and is running the kids to activities so that didn’t plan for him to be here, but now I wish he was.

    Great news in the middle of writing this (an hour ago) Mom’s surgeon walked into the waiting room much sooner than I expected and shared how the procedure went better than expected and that many things we were concerned might happen did not occur and all of this is amazing news!! It took them longer to get the lines in her this time (a number of factors are making her a tough stick at the moment) than the surgery took.

    And my cousin who works here came and gave me a hug a half hour ago as she headed in for her night shift. So I have much to be thankful for as I wrap up this post!

    I will say though that the waiting was lonely and difficult and I will be asking and trying to arrange someone to wait with me whenever there is a next time. Once Mom is cleared by this surgeon she will pursue knee replacement surgery next. Hopefully that will not be as nerve wracking.

  • August 21, 2025

    Caregiver Syndrome

    Saw a very brief video online today where Mel Robbins is describing Caregiver Burnout and shares that she does not want to see her followers make themselves wrong over it, encouraging them not to blame themselves.

    This is exactly what I needed to hear tonight as I am sitting in my car waiting for my son at baseball practice and it’s running a half hour late and then I am off to pick up my oldest from work. I am proud of them and want them to have all they have both in terms of experiences/opportunities AND belongings, but there are 4 of them and they Just went back to school today and I spent ALL day working or organizing my moms entire closet and drawers with her and I just about Always feel spent.

    If you’re thinking that maybe cleaning out and organizing my mom’s entire wardrobe wasn’t the greatest choice for my first day without the kids and that I could have chosen not to do that so that I could rest between online clients or so I could have gotten some other things accomplished for me, technically you’re right, it was a choice.

    But it’s complicated, Mom has surgery on Monday and she has lost so much weight since October and all she has gone through and with the recent months of a liquid diet. So when I went to help her pack her bag for post-surgery PT/OT rehab she said she needed to go through her clothes to purge what is way too big now and to figure out which size of all of the clothing she has saved over the years fits her. I can’t say it was a bad time entirely. She and I had a nice time togethers but it’s a lot of work hauling everything around and sorting it all and putting it all back and hopping on calls and then returning.

    In this sandwiched season I have done some direct care, but I am not even someone who does that daily. I truly feel for those who do that work around the clock. I cannot wrap my head around what it must be like to do that work. I am struggling with never having more than an hour or two to myself in a week’s time during the summer and to get those two hours I am either losing sleep or just ignoring some things that quite urgently do need to be done but are not emergent.

    Now that the school year has started and my children have a structured place to go I will be able to set aside one day a week to have a little self-care. Tomorrow I will have the opportunity to go for coffee with one or two wonderful friends who get me at a great place and I have appreciated with both my “hairapist” and my therapist and both are greatly needed. But I won’t be able to do all of that every week. There will be errands and appointments for my parents and children and many many things to prep from meals to fun things like costumes for trick or treat (that will still stress me out because my attention will be divided due to 50 other things I don’t prefer to have on my plate).

    Maybe I will miss this, but honestly I highly doubt I will miss all of it. And at the very same time it is Also True that I love each one in my household so very much.

  • August 14, 2025

    What Kind of Visit Should we Have Today?

    Took Mom to her AMAZING primary care physician today to an appointment that we scheduled months and months ago. These days you cannot get in with her unless she happens to be on the office when you are super sick and you get one of her sick visits or unless you book way in advance. We typically see a PA these days and many of them are fantastic, but they are not her primary provider who she started with after moving to the area and has known her medical history for the last 3 plus years.

    So we are about to have one of our favorite docs enter the room after Mom stood on the scale (amazed by the amount she has lost due to multiple surgeries and being on a liquid diet for months) and got her height measured (confirming she is shrinking)… and the nurse says that this is scheduled as an annual Medicare Wellness visit and she has noticed that Mom has had a lot going on here and does she want to switch it to some other type of visit.

    Long pause as neither Mom nor I knew how to respond to this, wondering to ourselves what is the difference between an annual Medicare Wellness visit and whatever other option the visit would be coded as? Then I asked if she is required to have that Medicare Annual Wellness visit and the nurse said no and she also specified that if we chose the Medicare Annual Wellness visit that the doc can only talk about the topics on a list that Medicare says the doctor should discuss. So of course we chose the other option, though we don’t really know what that other option is in the world of billing and coding.

    But we ended up with a beautifully thorough, normal session with one of our favorite docs who knows Mom well and we hope the bill isn’t out of the ordinary.

    Never had that question before.

  • August 12, 2025

    So How’s Your Mom?

    These days as a sandwiched individual who has been advocating for my parents for years now, with quite a bit of advocacy for Mom for almost a year now under the ongoing circumstances, people who haven’t seen me for a while say hello and tend to ask about Mom right away. It’s kind and considerate and I tell them that she’s uncomfortable on her ongoing liquid diet, but stable as she awaits surgery.

    What is the actual diagnosis? What kind of surgery is she to have? Who’s the surgeon? What is the recovery supposed to be like?

    I get it. I am someone who asks a lot of questions so that I can learn more about things and to demonstrate support for others when the questions do not seem too intrusive. And these questions are not intrusive. I have been very open, with Mom’s permission, about the whole journey so that others may learn from our experiences and be better able to advocate for their loved ones and themselves. And these caring people’s prayers and kind words and support are everything when walking through all that comes along with having medical needs or being there for someone who does.

    But it does feel strange to be here. To be of the generation who is asked these questions quickly after a greeting, almost in the same breath. And those who ask are quite often my age or older and/or are individuals who work in the medical field or who have been sandwiched themselves.

    It’s a relatable place to be. I am not alone, but there is a loneliness to knowing I am the one who will be responsible for every pre-op form, every post-op update, every aftercare instruction.

    And though I have experienced much thus far in this medical realm, advocating as the daughter, this does not mean I am prepared for what is next. I am not prepared, but I will go and do my best again while leaning on my village to seek information, guidance, and support.

  • July 29, 2025

    If I’m Not Right There

    I know many of you understand this with regard to your children. If you’re not right there, they don’t follow through with the chore. If you’re not right there they are on their screens instead of focusing on homework. If you’re not right there, they’re often fighting with one another and then blaming everyone else in the room when someone gets hurt.

    But I didn’t consider how, when sandwiched, this would work with my aging parents. I did what I thought was “it all” before leaving for a two week summer trip with my husband and four children and not only had I forgotten to reschedule one appointment I had scheduled for Mom (while also forgetting to return the library books on time), I managed to let something else slip through the cracks. I assumed Mom would handle logging onto a telehealth appointment with a GI provider (specially trained with nutritional expertise) on her own. She has logged in on her own before, but only with the small hospital system’s portal. This would be her first time with the larger hospital system’s online appointment log in.

    Somehow she never got the email with the link the first time. Of course the call to schedule the appointment came while I was driving my car and already feeling sick and having fled the pharmacy where I had just scooted out of line the other day because I spotted someone I wasn’t expecting to be there I was not in a place to make small talk with that person at that time. But that’s another story. Anyway, all of that had happened and I was driving my son to the library and got the call to set up this appointment. I explained that Mom is aging and she prefers that I schedule her appointment so the number they have on file is mine. I then explained that I would be traveling in a different time zone during the appointment and that they needed to send the link to the appointment to Mom’s email address, which I gave them.

    The Thursday appointment while I was traveling came and went and Mom says she never saw the link in her email. I called to reschedule and apparently they had already spoken to her and rescheduled for the following Thursday right around the same time. I acknowledged the scheduled appointment and again stated that at that time I would still be traveling in another time zone and they said that this time they were going to text her the link because when they email it it sometimes goes into people’s SPAM folders. Ok, so why didn’t you offer us the text option to begin with? I did not ask this aloud.

    So I was assured that all was well, that they had prepared Mom to log in on her phone when they texted her the link, and I reminded her myself. But guess what we received in the mail today? A letter stating that she now missed two appointments and if she misses a third she will be dismissed as a patient. Great. I should have wondered when I asked the woman I spoke to if there was going to be another phone call reminding us of the appointment and she said, no, that she was going to put the information in the system, and then I got a call from them a couple of days later asking for Mom and stating they were confirming the telehealth appointment. I responded that the appointment was confirmed and that she would log on if they text the link to her. I confirmed her number.

    If I’m not right there this is what happens. It just doesn’t get done. And now I have another appointment to call about to reschedule. Add it to the list.

  • July 28, 2025

    Enough

    I took my dad to a 6:30 am EKG this morning after getting home last evening from our two week trip with the kids. Did one load of laundry and spent my breakfast being the listening ear my dad needed. Called the pedi office to see if I can bring my daughter, who has been sick on and off with cold symptoms for a few weeks and now has quite a cough, to see if I can bring her along to be seen there while I brought my teen son for his wellness check up or before or after. My son’s appointment was at 9:40 AM, not one of the popular timeslots before or after parents’ work days. But they could not get her in.

    Thankfully both early morning appointments went well and brought helpful results. But then I had to head back out with my daughter to urgent care for a sick visit. They were helpful but it took me right up to zipping home to get there in the nick of time for my first client and the other three today

    My fifteen year old got everyone lunch while I worked, but by the time I was done it was time to pop dozen pizzas in the oven and open fruit and veggie trays and call it dinner as my husband made his way home.

    As I skipped preheating and hoped for the best as usual, I called my husband and vented about how I felt I got nothing done today because I didn’t unpack, I barely did laundry, and picking up around here escaped me as it often does. My husband was on point today and reminded me that I took loved ones to 3 doctors and saw 4 clients and that that’s a 7 hour day alone right there not to mention the drives, chores, and being there for all 4 of my children and both of my parents in different ways.

    It’s enough, but there’s not enough of me to go around. And I’m sandwiched and each day brings many challenges with opportunities right now.