Sandwiched Support

Tag: mom

  • September 29, 2025

    This morning I rushed from my early client session to log my mom onto this call that the rehab she was just in for post-surgery PT and OT (associated with the big hospital) wanted to have with her. It was short, involved a bunch of cover-their-butt questions and what I heard of it involved things Mom definitely already knew.

    I’m sure they have all kinds of different patients they follow up with and I’m also sure not everyone has the same support at home as Mom does so maybe these calls are more helpful for others.

    But the call was scheduled for 9 AM and this call center representative in another state was calling me several minutes ahead of time insisting that we log on and then the nurse was right there several minutes beforehand and rushing as though we were behind…seeming to want to get through it quickly….appearing a little annoyed when Mom was still finishing up in the bathroom and we weren’t 100 percent ready to have her on camera Ahead of the appointment time.

    So maybe this is better than the endless waiting we have experienced, especially on telemedicine calls, because the provider is overbooked and late. But this didn’t feel awesome either. I barely got down the stairs to Mom’s room and the call center lady was telling me to just click the link while I was getting down the stairs. There’s impatience there

    There must be quotas and overbooking and an understaffed, overworked situation. Not great.

    Better than not having it at all? It’s a toss up for us because it didn’t really help and it was an extra annoyance, but also we have learned that if the patient declines anything for any reason it goes down in the chart (almost always without a reason specified) as a refusal and refusals in your past count against you as you are trying to get into rehab in the future.

    And we hope Mom can get her knees replaced in the not too distant future. And we want to get into our favorite rehabs.

    So we better hustle down the stairs and out of the bathroom and onto that follow up video call so the rehab can check their boxes, document that they checked on us (in this case almost completely without added value for the patient, not gonna lie), and make sure they get and stay paid.

    Nothing wrong with it per se, but there are some different things going on these days that are not entirely without a sense of weird “over-the-top-ness” in my opinion. Wish I could get clear reasoning from those in power regarding them.

    Another example is that when we call with a medical question the bill looks a lot like they are saying it was a session. A little borderline questionable at times with the wording on the bill. I’m sure the codes are legit and show that it was a phone call in but some of those calls were QUITE brief and yielded very limited results but the language on the bill seems to describe them as though they are an in-depth service of significant value. Maybe sometimes? But sometimes I was the family member on the other end of that call in to the provider’s office and certainly didn’t speak to the provider. Someone got a message back to the provider and got back to us but we didn’t really have a telephone session. Just saying.

  • September 28, 2025

    Looking at the Week Ahead

    It’s a season where I am already overwhelmed on a Sunday night just looking at my week ahead with some manner of dread. A lot of weeks are like this but not all. Last week I was able to get coffee with two dear friends and we are aiming for once monthly and are so far two for two.

    But tomorrow I work and then I get Mom on an online appointment and then I head to two back to back appointment that I am fitting in to attend them in person for me. Then two additional online clients and then running kiddos to their evening activities. 2 kiddos out of 4 have something tomorrow evening so it’s not a super heavy load where we need to ask my Mom-in-law to be the third driver. Phew! She’s out of state visiting my sister-in-law and her family.

    Then it’s work outside the home the next two days with quick dinners and the evening rush and then Thursday I have client from home and doctors’ appointments for Dad and Mom to and Friday has more appointments for Mom.

    I am planning to watch a show online and spend a little time on social media and also try to get a decent night’s sleep while I’m not feeling my best.

    It’s A LOT right now while sandwiched. A whole lot.

  • September 24, 2025

    Pushing Through Anyway

    I haven’t been feeling well this week, but I’m sandwiched daughter and mom. There is really no one to fill in for me without rearranging or canceling plenty and without a TON of favors being asked likely of other moms who either don’t work outside of the home or work from home. Quite frankly unless I am completely incapacitated with a stomach virus that won’t quit I don’t want to take the time and energy to ask multiple people for help with ALL that I do for my family each week. Text after text to try to find the right person who happens to be free and willing to do each thing honestly ends up being a lot and quite frankly it wouldn’t be right if I didn’t return the favor later. And it’s not that I don’t want to help them out, it’s only fair and these individuals are friends and relatives and fellow sandwiched moms in solidarity, it’s just that I already feel like I don’t have the bandwidth to keep up with my own family’s needs and wants. And I know they feel the same way. So just like people show up to work sick, Moms do that too except we don’t get a real restful break unless someone chooses to step up to take something off of our plates and between the meal prep, the appointments, the running kids to activities, the housework, the laundry, and the childcare, homework support, and support of aging loved ones, no one is willing to take it all on. Lightening the load of a member of the sandwiched generation is absolutely a thing and it is greatly appreciated, but truly there is no one who is really taking it all on for even one day. Sometimes a husband takes on putting out the “fires” of what’s needed to get his children through the day or a mom-in-law runs the kids to everything, makes lunch and dinner, and puts in a load of laundry, but it is a rarity that coverage does not leave plenty for the primary sandwiched adult to catch up on once well.

    A comparison can be made here to any job, but truly there is no comparison to the number of items on the primary caregiver/sandwiched adult’s list. And so very many categories leaving “tabs” open in the brain.

    A visit to urgent care or a nap or a trip to pick up a medication is carefully considered and life juggled to fit it in with everything else. And boy do we ever try not to loop in someone else. Instead sleep is lost, meals are skipped, and we do the next thing while the laundry and dust bunnies collect and multiply.

  • September 22, 2025

    I brought Mom home from the big hospital’s rehab today. It was a quick run up and back with a full afternoon of online clients and evening activities for the kids ahead. We did not have a big reunion as she was ready to head through the door into the suite she and Dad share. Each kiddo did go in and greet and spend time with her, but the mamarazzi wasn’t there this time. At this point we are deeply grateful while also on the edge of our seats praying that as far as this medical journey goes (this one that started last October 19th) maybe we will wrap it up before a year. She was rehospitalized again last week Monday-Wednesday and was able to return to the rehab at that time with planned discharge home today with home health nursing, PT, and OT starting Wednesday of this week.

    It feels a little like Groundhog Day kind of in the worst way while also allowing for very cautious optimism because there has not been a post-surgery blockage.

    We’ll take it, but it’s also true that We’ll take it from here. Some progress takes place more smoothly at home and we are hopeful that that will be true for Mom.

    Practicing acceptance that recovery and healing is rarely linear.

  • September 19, 2025

    Where’s That Uniform

    I’ve tried to train them to put the dirty uniform right on the laundry room floor. I used to forget to wash them on time pretty often before I did that. Now I will see soccer, baseball, dance, robotics bunched up in an inside out heap on the floor with tights and tall socks intermingled and be immediately reminded to spray those stains and toss it all in with the next load. For my oldest two I can hand over the responsibility for the freshly laundered and folded stacks right away and they will know where they are when it’s go time.

    Game time or Show Time or Practice (yep even at the practices for some activities there is a dress code or uniform required) comes along and my younger two have no clue. Gotta keep working with them on this….in my spare time.

    The other day I managed to clear and sort everything on the laundry room floor (kind of a big feat at our house in this season of life) trying to find my youngest son’s soccer uniform to get it clean in time and we realized it was in his hamper in his room the whole time. Same deal with my daughter. Not where the items needed to be. Up in her hamper as well.

    Trying to bring to life systems that work for our actual schedules. Now if everyone would join me in them. I guess that’s the rub.

  • September 18, 2025

    Inservice

    Tomorrow is a random inservice day quite early in the school year and our kids have off from public school. There will be two and a half days off in October as well around conferences though they don’t have Columbus Day off in the same week. I see parents on social media talking about this often, that the kids seem to have more and more days off or half days and days that are not as often around holidays. We found ways to have fun. I am writing and posting these posts late and our oldest two sons played their first rounds of 9 holes of golf with Dad which went really well, our third son had the time of his life at an outdoor adventure place with a small group of friends for the friend’s birthday, and I had a big play date at our house with a bunch of my daughter’s friends. Play date went great but it was an all-day commitment. Then I had some tickets for an amusement park that were going to expire so the kids lived their best lives Saturday and then sports Sunday afternoon. Quite often I am choosing between catching up the pages of work I need to enter into the computer and laundry, organizing, and tidying up. I am sitting at soccer practice now catching up the blog posts because I let them lapse last week. Not feeling super well and sometimes it all feels like a lot because in this season, it truly is.

  • September 16, 2025

    This is not a cutting matter.

    If a surgeon is being asked to do anything beyond determining if surgery is needed, if post-surgical healing looks to be on track, or of course surgery itself they seem to unequivocally prefer not to.

    I get it, they are the highly trained specialists and the only ones who can perform the surgeries (along with other types of providers and specialists on their team and similar teams). So they seem to want the hospital to pass the patient, with post-surgical complications, onto another department of providers (in Mom’s case it’s been internal medicine or GI) to monitor and treat them if there is nothing that warrants emergent or scheduled upcoming surgery.

    But yet the hospital wants them to show up each time to follow through with making sure the patients they operated on are taken care of. Seems reasonable and understandable until you factor in how busy they are and how few of them there are and you start to notice them getting short with abs frustrated with the patients who return with pain, with “inflammation,” with complications.

    From being unsettled and taking a longer time to heal and recovery than the average patient of the same age and condition (this seems to be Mom’s situation right now) up to the need for emergent follow-up surgery and everything in between I’m sure they see so many patients that it may be difficult to keep up with it all.

    So what are the hospital systems doing about this? Can there be more PA’s and NP’s who are trained by the surgical team and work for them and with them to provide excellent follow-up care not just in the office post-op, but also with the more complicated situations where patients are readmitted post-surgery with a variety of problems? Certainly the surgeon who operated on the patient and the team should be closely involved at looking at all scans, ordering tests, and weighing in on the treatment plan after considering all relevant information, but surely other educated medical providers who are not operating can provide supportive care as the patient is under observation.

    Can we come up with a better system where someone who has time truly listens to the patient and the patient’s family/advocates/support people to get the full picture while tests are being run? Can those individuals be trained to diagnose and treat post-surgical complications that do not appear to involve the need for further surgery to free-up the surgeons without leaving the patient and patient’s family feeling dismissed?

    How can the hospital teams communicate and work better together?

    And who can we assign to communicate with the family and other members of the support system on a regular basis to receive and answer their questions with empathy and compassion and to provide reasonable medical updates?

  • September 15, 2025

    Admit for Observation

    Mom has ongoing abdominal pain and is in the ED of the big hospital and they are going to admit her for observation for 1-3 days. Surgeon said earlier that the inflammation in the CT scan looked mild and Mom could go back to the rehab. Plain is not ongoing and they say admit 1-3 days. I wonder how we can know how long it will take, how long she will need.

    It’s tough to plan the week and when she might be discharged. It’s hard to know what to expect and to imagine next steps. There are worries that this could be last Fall all over again and everything that came with it. Dad says not to worry ahead of knowing what will happen and as a mental health professional I too know better, but in the sandwiches season it is a challenge not to fear the unknown.

  • September 11, 2025

    3 Day Rule

    I saw an article by CBS News on my phone today talking about how a patient on Medicare has to have been in the hospital (not counting the ED) for 3 days which is 3 midnights in order for the patient to be eligible to enter rehab following the hospital stay. Something new to me again. Mom always has been hospitalized for more than 3 days when we have sought out rehab for her so I did not give thought to how long she had to be hospitalized qualify to go. I just thought it was based on medical need to be in rehab for PR and OT.

    Always something more. I wonder if I will ever find the time to read through every document full of fine print.

  • September 9, 2025

    We Can’t Accommodate

    I am realizing more and more that while the Physical and Occupational therapists at the acute rehab centers in our general area are fantastic, well-trained, extremely hardworking, and motivators, they really don’t have all of the tools to accommodate everyone’s needs. Mom is medically complex but not nearly as medically complex as others. The more I get to know what the rehabs do not have, the more grateful I am for the setup we do have here at home for Mom.

    She is now in the second Acute rehab that does not have a grab bar by the toilet on the side of her good arm. She is very hesitant to try to manage, even with help, in the private bathroom connected to her room at rehab, because she has a torn rotator cuff on the arm that would be used to grab the grab bar by the toilet to help her stand up and she cannot support herself with just that arm. She stated that everything is backwards from what she needs and has at home.

    Every rehab asks about stairs in the home and Mom and Dad’s living space is on the main floor of the house so there are only two stairs down into the garage for her to get in and out of the house. We have measured the stairs and reported the measurements to every rehab and they insist that they cannot send Mom home until she demonstrates in PT at the rehab that she can climb up and down the two stairs. Here’s the catch though. They don’t have any stair setups in their gyms that are like the two stairs heading down into our garage. The rise is not the same. The run is not the same. It wouldn’t matter too much if Mom didn’t have bone on bone arthritic knees awaiting replacements, but when the stairs are bigger than what she has to do at home and they have angled railings on each side which is not what she uses. To get down the two steps she uses her walker or takes someone’s arm to help. To get up the two steps we have a curved grab bar mounted to the wall, one grab bar on either side of the wall so she can pull herself up one step at a time. They don’t have a set up at rehab that mimics that.

    She has a grab ring in the middle of the bed (my parents have two twin mattresses that each are remote operated to recline or be raised similar to a hospital mattress). She has two very short stairs with railings that help her get up into bed with motion activated lights that turn on what she gets up at night to lead her to the bathrooms. Her rehab beds do not have steps up to them or railings. The bench and grab bars in the shower we have for her at home are different than what they have in the showers at the rehab. She is not really practicing to go home with the accommodations we have at home.

    It would be great if they had more options to accommodate individuals and to simulate what they actually have at home.